Advance HAE

For those with HAE/C1INH-AAE

The US Hereditary Angioedema Association, Inc. (HAEA) is a non-profit, patient advocacy organization dedicated to serving patients with C1 Inhibitor Deficiency or Hereditary Angioedema. We have created this app in the hope that it may improve the quality of life for our community and perhaps save lives.

This free app will allow you to easily create the necessary data for you to understand your health better and for healthcare professionals to be able to treat you more effectively. When you enter data about your attacks, the reports within the app show you visually the triggers of your attacks, treatments used and areas affected. Coupled with a date range feature, this can become a powerful tool in your healthcare prevention. You can share the data with your healthcare professional who in turn may use this data to alter your treatment.

This app can also be used by members of the US HAEA Scientific Registry and/or by patients wanting to keep track of their HAE.

We greatly value your privacy, including your personal information, and the data that you store. On the Advance HAE app, we collect and store your information only with your consent; we only collect the minimum amount of information necessary to provide the services to you of Advance HAE. We never sell your information to third parties.